I had a post written up covering the last couple days while we were waiting for results, but now that I have them, those details seem less important somehow. First the Chimerism test results, then I’ll try to explain them. … Continue reading
Last night I spent a lot of time talking to Maya about today, trying to prepare her. We knew that it would be necessary for her to wear a mask during her time here, and I wasn’t sure how that … Continue reading
Shew. Long week, but very satisfying in some ways because we now know everything about Zoe from head to toe. No more worrying about what we don’t know, now we only worry about what we do. She’s been poked, prodded, … Continue reading
A lot more information today. Some days it feels like we’re drowning in medical data and decisions. Michelle and I have been working through the options and doing our best to understand each path using our own research and what … Continue reading
We’ve decided to go forward with the Reduced Intensity Conditioning (RIC) for Zoe. As I mentioned yesterday, it came up again in conversation with Dr. M, and after a long meeting at Duke where we discussed both the RIC and … Continue reading
Today was a stressful day as the start of our transplant process. Duke’s team couldn’t have been better, but I think there was really no way around our being a little tense at the outset of this. Among the topics … Continue reading
It’s decision time for Zoe. I’ve talked about this before, about our stress and uncertainty with the decision to transplant Zoe, but until now it has remained a discussion rather than an imminent decision. I’ll try to talk about what’s … Continue reading
After last week’s lower immune counts we had skipped the VP-16 dose for the week, so today Michelle is in the clinic “catching up” a bit. Zoe’s vitals are back up nicely for the most part, with the exception of … Continue reading
On Friday we met with Dr. P, one of the Duke Medical Center docs who will be treating Zoe once we confirm her need for a Stem Cell Transplant. Prior to the meeting, Michelle and I drew up a list … Continue reading
On Friday we traveled to Durham to visit Duke Medical Center and meet with part of the team there who will likely be handling Zoe’s Stem Cell Transplant. Overall it was a great visit, very positive and we gained a … Continue reading