Today’s clinic visit brought interesting news, there was talk for the first time about a release date. Release at this point means being allowed to return home and switching our long term care to Wake Forest University Hospital (Brenner). They … Continue reading
Zoe has had a big day so far today. We’ve just checked into the Duke Pediatric Blood & Marrow Transplant unit (PBMT), known here as 5200. We started off this morning with two alarms to wake us up: one at … Continue reading
Nil Per Os: A Latin phrase which means, “nothing through the mouth” Outside of the truly bad things, those three little letters have come to foreshadow more anguish and suffering around our household than most any other. Don’t feed your … Continue reading
Well, we headed into the hospital for our routine blood draw for CBC and vitals, and ended up in there an extra 3 hours. Typically the way the blood draw works is this: the nurse flushes her Broviac line with … Continue reading